Morning surprise

While doing my makeup for the day I noticed this little man was in my bed (after it was already made). It was a picture worth taking. Messed up bed and all. Have a good day. He is Indiana Jones with his hat and fake whip just thrown.

Gotta get going for the day. Carter & Cole are off half day.
k-

WBC low

Dr. Hu was my oncologist for the morning. My WBC is a low 3.2. The range is 4.0 - 9.8. My October WBC was 8.4. We will need to monitor this more closely. I am not sure at this point if my chemo regimen will be lowered Friday for Novembers cycle. I have a call into Dr. Hu as I forgot to ask. It is most likely going to stay at 350 mg. I also forgot to ask what is expected with a low white blood cell count. Time to google this information. See below.

White blood cells. These cells help your body fight infection. A low white blood cell count (leukopenia) leaves your body more open to infection. And if an infection does develop, your body may be unable to fight it off.

Following up on my earlier post concerning early menopause...

80 - 90 % of patients taking Temodar (chemo) experience early menopause. Time will tell. I will find out more later with Dr. Needles.

k-

November doctors appt.

My November oncologist appointment is in the morning. Labs to be taken prior to the appointment. I forgot to do my labs on Friday & Saturday. Oops. Dr. Needles is out for a few days. I will see a doctor on call. I have a few questions this time around.

1. Chemo induced early menopause (I'll chat possibly later with you on this one.)
2. Chemo stop date - Will it be February? (of course this ? will probably have to wait till Decembers appointment)

Gotta get to bed...
k-

Two Year Anniversary

Today is the TWO YEAR anniversary from the first brain surgery. I can't believe it has been two years already. Last night a flood of emotions came over me. Carter was reflective at bedtime as well. He said that he couldn't believe it was that long ago. He said he is thankful that surgery is not for this Christmas season.

Below are some reflections I have for today. I may add more throughout the day as time allows. Some of these were reminded to me in a email from a friend watching her husband going through cancer.

1. As I study Romans in CBS...asking GOD to help me remember it all, and never forget what HE has done - the list is large and for me to ..." rejoice in this suffering, knowing it will produce endurance, character and hope-hope that will not disappoint because God's love has been poured into my heart through the Holy Spirit who has been given to me " ( Romans 5:3-5).

2. A desire for our boys to never forget watching their mom and dad go through this...They will tell of HIS wonderful acts...(Ps. 145:)... they (we) will eagerly utter the memories of GOD's abundant goodness...

3. God's goodness - Wow! Where do I begin?

4. The unknowns of cancer...vs...NO unknowns of God. He is in control. Hallelujah

5. The love of God never left me.

6. I can be here with my family for two good years. - Walking Talking, Laughing, Some processing (be it slow.)

7. A commited caring husband

8. The hands and feet of Jesus with people here on Earth. Meals, housecleaning, cards, phonecalls, an ear to listen, etc.

Add more in the comments as you see fit.
kate

Scripture for Voting Day

My Bible study leader sent an email today encouraging us with the following. It was a great reminder to me after I studied Daniel (end times) two years ago. Thank you, Sharon.
kate

As we pray about our nation and the elections tomorrow, let’s be comforted and encouraged by the truth that God is in control.

“Praise be to name of God for ever and ever; wisdom and power are his. He changes times and season; he sets up kings and deposes them. He gives wisdom to the wise and knowledge to the discerning. He reveals deep and hidden things; he knows what lies in darkness, and light dwells with him.“

Daniel 2:20-22

Trusting

May the God of
hope fill you with all
joy and peace as you
trust in Him.
Romans 15:13

The above verse is a card that was on my kitchen cabinet from someone who sent it to me last year. The past few days it has spoken to my heart. May you ponder and be blessed by it as well.
k-

Todays Pictures - Enjoy

Burning bush in backyard

Neighbors Tree

Backyard looking up

Pinecone in cul de sac

Front porch view

Happy Stuart on warm November day

C train in action (Cole)

Holly berry tree on corner of house in bloom

Boiler Up

I love this man!
We are imperfect people perfect for each other.

Dave and I just returned from a great getaway weekend at Purdue. They lost the football game against Minnesota but oh well. We had fun. At the game the fans cheered "Boiler up" when the athletes did a defensive move. Dave said that is a new term. I bought a shirt with those words. It is drying as we type. I had fun repeating "boiler up" to him. Lots of eating out, walking and shopping was had along with good conversation. We did go to LaBamba, the mexican joint that boasts they have burritos as big as your head. Ughhh. Dave stated it wasn't what he remember them tasting like. I agreed. We were disappointed. Our taste buds have been radically changed with me having cancer and such. We revamped our eating habits the past two years and it shows. I am sure the mexican food was just like it used to be - but oh well. After the game and food I took a late afternoon nap at the hotel. I was exhausted. (I am laughing at the above sentence stating our eating habits changed since surgery. With what I am about to type.) We ended up having Cold Stone Creamery ice cream for our dinner by accident. (Timing was off.) We decided to go back to the hotel after the sugar to watch some movies and never went back out. We were full from the bomba. So much for a healthy dinner. (shhh don't tell the kids.) Sunday morning we were so ready for a good breakfast.

Artwork at LaBamba

Many thanks to my mom for helping take care of the boys on the homefront. Yes, she was the official "soccer gram" on Saturday with Cole's chilly early morning game. Stuart did not nap for her on two of the days. She had her hands full for sure.

The bummer of it all is that I missed Angie's memorial on Saturday. A friend mentioned to me the following in an email a few weeks ago.
"God, in his foreknowledge, KNEW Angie's days. He knew when she would die He knew when her memorial would be planned in St. Louis, and he KNEW that you and Dave would be planning a weekend together...and that it would be THAT weekend."

Great weekend memories...
k-

Voting Importance

I am feeling much better this afternoon. Thank you. It was the chemo lapse side effect. Hmmm two days. I really hope it doesn't do this in November.

I normally don't get into political stuff yet, I thought this video was one NOT to pass up.

http://www.onenewssnow.com/valuesvoters.aspx

My post won't let me make it into a direct web link. You will need to copy and paste it to your internet. If you have a firewall it may not let you into the website.

Off to family movie night. Gotta get a movie and order pizza. The boys do not have school tomorrow - Teacher work day.

k-

Today was a First

Today was a first ( hopefully not of many to come) in the chemo regimen. I finished my five day October cycle Tuesday night. This morning I was ill. I vomited. I am hoping constipation was the culprit. Zofran should help this morning along with sleep while Stuart is at school.

k-

Culture Results

The results are in from Cole's finger culture from Friday.
Two items resulted. 1. Group A strep 2. Staph. Both will be eradicated with the oral antibiotic he has been on since Friday. Even the staph. The pediatrician affirmed my hesitations.

Gotta take a nap... I have been tired the past few days along with good nausea.

I am glad that tonight is the 5 of 5 nights chemo. Last Night Hooray!

k-

Impetigo part 2

Ok, why is it pronounced em FE tigo and yet spelled impetigo. I don't see the silent "f" sound. Must be latin. I better ask Carter for he is taking it this year. Hmmmm.

The latest update on Cole is that the culture was taken, I forgot to ask the doctor when we will know the results. Stuart (Dennis) was all over the place during the appointment and Cole was a little fearful of it possibly hurting. Multitasking can we say? I was so ready to leave when it was all said and done. I called after my nap yesterday and spoke to a receptionist. She said most likely we will hear something after Tuesday on what the bacteria could be on his fingers. Cole was prescribed an oral antibiotic. He will be taking it along with his topical ointment three times daily. I need to soak his fingers daily. We can already see an improvement. The oral antibiotic is the big guns since Cole has a PCN, penicillin allergy. He cannot take the simple antibiotic of amoxicillin. He did not return to school yesterday for Grandparents Day. Fine for him. He also did not have his soccer game today. Not fine for him. It was forfeited due to many who could not attend. That made him feel better. Long story short: A culture was taken. We will find out more later. Cole and famly are recovering.

Today has been one of needed rest for all. I didn't get out of bed till 9:24 which is not like me. I was up at 6 ish yet stayed in bed. I also took a nap when Stuart had his quiet time this afternoon for I was tired. Chemo is now in effect. I have the normal first chemo side effects of a mild head rush and an upset stomach. Tolerable, so I cannot complain. I am hoping for no more effects.

Many thanks to Jane for bringing delicious, moist bran muffins to my home yesterday morning. I have devoured many. They will be gone by Sunday. No problem.

Today has been a good day.
kate

Impetigo

Cole and Stuart came down this week with a contagious skin infection, impetigo. I am taking Cole to the doctor this morning. He doesn't have the spots on his face like Stuart did but his fingertips are infected. We just noticed it last night! Thankfully the oral antibiotic is helping Stuart. Cole is taking an antibiotic ointment. That most likely will change after the visit this morning. Please pray it is not a serious staph infection. What am I saying all staph infections are serious. Aren't they? Aghhhh.

http://kidshealth.org/parent/infections/bacterial_viral/impetigo.html

Grandparents Day is this morning at school. My dad is attending. My mom is out of town. The other grandparents live out of state.

kate

BirthDAY pics

Forgot to mention that a Fed Ex package arrived today. Yes, it was my chemo for Friday. It's a great reminder that I am thankful to be here on earth celebrating with my family(poison and all).

The family at dinner

35 year old Mom with her boys

Stuart helping mom blow out the candle

2 down, 45 to GO

6:45 am revision: I came downstairs to find Carter making breakfast. An over easy egg with pancakes were already on the "You are special plate". Oh that does my heart good this morning. At bedtime, Stuart was crying wanting to give me my birthday card he just made. He didn't understand that it was in the morning. I look forward to opening it this morning at breakfast with everyone.

8:15 am revision: Carter summoned me to return to bed for breakfast in bed. He even made peppermint hot tea with my good china cup and a saucer! I never use a saucer on the weekdays let alone my cute cups. It is usually the hospital / school ugly mugs during the week. A cute surprise was the iced tea spoon he used to stir the honey. They are extremely long if you know what I mean. Stuart wanted to show me every sticker he used for the birthday card. Cole's creative card could have been used as a purse. He corrected me in saying it could be used as a necklace. Thanks to pipe cleaners aka: chenille stems. I will try to post pictures later today (maybe tomorrow) in this post. Keep checking.

Written yesterday as a draft for today:
That's right! I am 35 today! By my calculations 2 down and 45 to go for 82 years of living cancerfree. The doctors median expectancy 2 years ago gave me 4 years. I am thankful I have had two great years with my family and friends. Tonight we plan to celebrate as a family by eating out for dinner.

This is the day which the LORD has made; Let us rejoice and be glad in it.

Psalm 118:24

Dave and I have a weekend getaway planned sometime soon. We are going to see a Purdue football game. His alma mater. Yes, this was my idea. I love any time away with my husband. If football & food is in the mix...GREAT. I have already told him that I want to eat at the "Burritos as big as your head" locale. Cannot remember the name of the restaurant at this time. But you get what I am trying to say. The food there tastes good! The last game we attended was when we were dating. Good memories... Somewhat.... My feet froze during that November game. Not this time! I will be prepared. The picture below is from that weekend.

Purdue Calendar Girl
(NOT!)

Farewell

On Sunday afternoon we hosted a Farewell Party for our good friends, Wade and Ramona. They are moving to Mississippi soon. They have been such good friends to us during the past few years. Wade spent each night with Dave while I was in the ICU for both surgeries. That's TWO. He was such a blessing to Dave to have someone there for companionship. Later they had good laughs over some things that happened. Dave is a hard sleeper. My 2006 nurse was trying to wake him at one point during the night. She "straddled" him from what Wade was saying. Not sure what the truth is...Oh well.

Our families have even vacationed together. August of 2007 was such fun at the Ozarks. We really had a good time getting to know one another. Good laughs. Ask them about the scorpions. Aghhh - maybe not

On to the party. It was good to have the energy to plan the event. It was also good to have the party on my planner prior to the MRI results last week. I was mostly concerned about the party details over the MRI results till I heard about Angie's death.

Wade, Ramona, Liliana & Leila you will be missed.

k-

Stable

The MRI results stated "stable" in the notes. We are praising God for this information today.

Sorry for a short post today but time is precious at home.

k-

Angie

My friend, Angie passed away last night at 6:15. I found out this morning.

k-

99 Balloons

Many thanks to Heather for posting this on her blog. I was oh SO touched. Be sure to turn up the volume and watch it ALL.
It is a great reminder of how a parent loves their child no matter what and how God loves ME no matter what. Thank you Jesus. I am fearfully and wonderfully made.

Copy the following link and paste onto your browser.

http://www.ignitermedia.com/products/iv/singles/570/99-Balloons

k-

MRI again!

Yes, my MRI was today. It was ok except for my need to clear my throat. I tried desperately hard to not move my head. Very hard to do when you need to clear the throat / cough when the machine is making the hard knocking noises along with clicking vibrations. I took my time praying for various needs that came to mind. It is nice having my MRI at the Town & Country location branch. The ladies there are getting to know me and I them. Levetta is a delight. She has decided to make a file specifically for me. You see I fill out the same papers each time I go in. It doesn't change that often and we know it. She asks about the boys especially Stuart since she has seen him often. It is like a hometown branch. The ladies were joking today. The mood was good. Sue is also a big help. She takes my labs every once in a while. She also was the one who did my first CT scan in late October of 2006. The first time we found out about the cancer. A day I won't forget....Laying in on the scan table wondering why I was having so many debilitating headaches.

Thanks for checking in. I see the doctor on Friday with the results. Pray for no change from the last scan.

Off to check on the homemade chicken noodle soup. Stuart and I are needing it badly tonight. Yes, he has it too.

k-

Why do you do...what you do?

What a person does is the visible evidence of what is person is.

The above quote I felt was powerful in my CBS notes on Romans.

A Broken Record

I have been battling a cold the past few days. Dave unfortunately has also contracted it as of this morning. It is tiring/discouraging having multiple colds. My throat is sore at night with this cold. Sleep is affected.

This weekend was good even with a cold. The boys each played their respective games great! Cole scored his first ever goal in soccer. I didn't get to see this feat. I heard it was wonderful. I stayed home while Carter caught up on his sleep. Friday night he attended a lock-in at church with his fellow Sunday school friends. As for Carter's feat he had his first "in the park home run" last night at his fall ball game. Cole, Stuart and I were at the schools fall picnic. Yes, I missed both feats. Discouraging.

Hope your weekend is going well.

I have my next MRI on Tuesday morning.

k-

Information for you

I'd like to say that I am in full force with the school routine at home. Not so! Hopefully ya'll out there are doing better than I am.

The following are the next dates coming up pertaining to cancer world.

MRI (last one was 3 months ago) - Tuesday, October 7
Next doctors appointment (to discuss MRI) - Friday, October 10
Next chemo cycle (Good nap weekend) - Friday, October 17 - 21

Have a good Tuesday,
k-

Tolerable

Praise God from whom all blessings flow...

Last night was my last chemo pills and so far so good on the side effects. Fatigue is the chief complaint at this time. I will take being tired over the other items recently experienced during the chemo cycles.

Yesterday my mom joined me in seeing the oncologist. Dave has been ultimately busy at work and could not attend. Tuesdays are really the prime busy day for him. The doctor & I discussed why I should not come while on the chemo cycle for that defeats the purpose of the bloodwork. Duh. I was wondering why I am seeing him later lately. It is just the way the calendar had scheduled it. I will be having a MRI in early October then see Dr. Needles on the 10th with a follow up. Blood work is always a given. My lab numbers looked good yesterday. My upcoming October chemo cycle is the 17th - 21st.

Off to study Romans at CBS this morning. Whoa is it good!

Have a great Wednesday,
k-

Weekend News!

Stuart & his giraffeCarter with some serious air time.

Happy Stu after slide

Cole ready for the velcro wall.

Our weekend in review:

Friday- Stuart and I enjoyed leisure time at the zoo. He has been neglected with good mommy time lately and I was aware of it. It seems that Carter and Cole got the best of me and Stuart only gets me. At least he gets me though. I wanted to treat him to the zoo for the older boys were given lots of excursions when they were young like him. I haven't done that much for him lately. Go figure! You should have seen his expression when I stated Thursday evening that he was going to the zoo. He was elated. "I want to see the giraffes." "Okay!" Once at the zoo he wanted to ride the train then was changing his mind so often that he didn't know what to do with himself. We took a long walk... long... Did I mention it was long? We enjoyed seeing the ducks at the pond of all things then we went to see the snakes & monkeys ughh. Not my fav. Stuart neither. After walking some more here are the giraffes. They were beautiful and very close up. It was nice to be able to sit on benches and eat snacks often. We were in no rush to be anywhere.

Started chemo this night through Tuesday eve.

Saturday- Cole had a 10 am soccer game in which he assisted a team mate in the scoring of the goal. He was happy even though they didn't win for he had a great smile on his face once home. I did not go to the game for Dave thought it might have been too much for me. I napped thirty minutes in the morning. We had his company picnic to attend from 11 - 3. Loads of fun for the kids. Lots of food, a bounce house and slide not to mention a velcro wall. Ohh was that fun! We are so blessed to have a good company to work for. They have been good to Dave.
**Please pray for my friend, Angie and her husband Colin. She has recently been entubated in a Texas hospital. She has complications from cancer that originated in the breasts. The cancer has spread to her lymph nodes, lungs, liver, bones and most recently the brain. She also has congestive heart failure. This is her second time being entubated in a years time. My heart is heavy for the family. They have been called in (second time as well in a year). So far that is all I know.

Sunday- Good to be at church. Great notes from the sermon. I would love to find the time to write them out. After lunch the older boys went with Aunt Jeanie on a hike to a cave in Franklin county. They have been planning this for some time since last years excursion. It was WAY fun last time. They were giddy going to bed and waking this morning. Aunt Jeanie is a delight to our hearts.

Today marks the 13 year anniversary when Dave asked me to be his wife!

Picture Day Rush

Today at school is picture day. This morning along with last night was a hub bub of sorts. Ironing shirts, shorts, etc. This morning was getting the hair gel in place. Not messing it up with a hoodie was a fiasco for Cole. Stuart will need a bath today due to sticky face & hands from a cinnamon raisan french toast breakfast. He is to arrive at 11:00 for individual pics. He normally attends school on Tuesday & Thursdays. There will be an all school picture at 11:30. No Bible study this morning for me. Too much busyness. I am still in my p.j.'s.

Please take the time to pray for Dave. He is coming down with a virus. He is going to bed earlier than normal due to swollen glands. Work also has been a busy one for him with lots of meetings.

I will have my blood drawn tomorrow morning. My next doctors appointment is Tuesday the 23rd. This Friday starts my chemo cycle. It will most likely run till Tuesday eve if complications do not arise like my migraine last time. Please pray for a non eventful 5 day cycle.

kate

Sleep In Saturday

It seems to be a Sleep in Saturday at our home. Carter is the only one awake with me at 6:55 am. It is nice to have an overcast Saturday morning. The boys went to bed late due to Family nite movie nite. Cole stayed home from school yesterday with a fever. 3pm Thursday at school he was complaining of an intense headache. He cried (I knew it was bad... he doesn't cry in front of his friends) ok the staff walked him personally to me in the carpool line. He laid down in back of the van till home and a temperature was taken 101.4 two hours later 102.4. We will most likely relax at home with him today. He will not be able to go to his soccer game since the fever was still with him as he went to bed last night. We desired for him to have a good 24 hour fever free day but that wasn't the case. Thankfully Tylenol / Advil helps with the fever and pain. He did not wake me up during the night (unlike Thursday night) so I am hoping he is feeling better this morning.

I am feeling much better since my last post thank you. It is a good reminder to be able to take care of someone else I love who's sick.

Chemo starts next Friday, the 19th and runs till Tuesday the 23rd.

Have a good Saturday...

Stuarts awake gotta go.
k-

Bad to worse

This was written Tuesday night and I deleted it early Wednesday morning thinking it was not of blog material. I have changed my mind. My symptoms have gone from bad to worse.

"Well, it is right on time. School has started and so have the colds in our home. It seems mine is quite a severe one. I am up after midnight after going to bed at 8:30 and not sleeping well. The nostrils are getting a work for their money. I despise colds more than anything. Of course, who likes to be sick? I am hoping that this illness departs quickly before I start my chemo later next week. I am discouraged.

Oh well,
kate


Last week I was wondering why my tongue had sores on each side. Now I know. My immune system is slammed most likely due to last months chemo. To top it off this morning I awoke with a good cold sore on my lip. Great for the dental appointment today. Lovely. Cancer has taken a toll on my body both physically and emotionally. I can still say that God is my portion forever. I don't like this but God is in control. After a good cry this morning I am alright.

k-

Forgetful & Eyes

After just writing the soccer season post at 7:40ish Dave realized that I forgot the Trader Joes groceries from 2:00. You see I went to Sam's, the mall (shoes for Cole) and Trader Joes today after the soccer game. I had two gallons of milk from T.J's in the trunk of the car. I came home and emptied the dry goods from Sam's and Coles shoes forgetting about the groceries in the trunk. After a good nap and Dave cleaning house he realized we didn't see any Trader Joe's bags in the kitchen. We ran to the garage. Ho hum. After dinner I went to Trader Joe's to purchase new milk for our family. This is disheartning for Dave and I. I am taking it pretty hard. I am frustrated that I didn't remember the groceries. I forgot to put away cold groceries in the house last Tuesday. I was in such a hurry to get out the door after Stuart was dropped off with carpool that I totally forgot the cold stuff. Two hours later I realized this accident. Go figure on Wednesday at the mall I left my keys in the car after getting Carter and Cole a special lunch from Chick Fil A for school. Yes, keys in car happen to most of us... Yet it is just the topping on the cake for me.

Also an update on my eyes. On Friday I had my yearly exam. After testing my field of vision. It showed that each eye has difficulty seeing in the upper left quadraint area. More on the left eye. The doctor suggested that there could be a problem with the right temporal lobe. I explained my second surgery in December taking ALL of my anterior right frontal lobe(forgot all about the left sided paralysis...oops thank you, Dave). He said that the surgery could be part of this issue as he wasn't sure how close the temporal lobe is to the frontal. He also said not to worry since I am having regular MRI's. I will be in contact with my neurosurgeon, Dr. Forget to send surgical notes to the eye doc.

Please pray for my forgetfulness and eyes. The Lord is faithful.

." THE LORD, HE is the ONE who goes before us, He will be with us. He will not leave us nor forsake us....so we do not fear nor be dismayed" Deut. 31:8

Soccer Season has begun

Well, yes the soccer season has begun in our household. Cole had his first game this morning. His team lost unfortunately. If you remember correctly, last season the league put his team on the wrong level like the "A". Of course I thought Cole to be an "A" player. They as a whole were placed appropriately hopefully this fall. We will see. Todays game looked good in the first quarter. (I don't know if they have quarters - I am totally not soccer savy.) Carter will not be playing soccer due to his interest in basketball. He is currently on a select league and has been practicing twice a week since early August. I think his first game will be late fall. Dave knows this information. Carter loves it.

The boys have now finished 8 days of school. They went four days had Labor Day break then four more days. Stuart on the other hand had four days due to going only Tuesday & Thursdays. He is loving his teacher and comes home exhausted but content. At dinner you can find a good song that is his welcome and goodbye song for the day. I went early to pick him up last Thursday and had a few giggles from seeing how the three year olds handle school. We never had Carter and Cole in school at this age. It is fun to experience his joy.

Hope all is well with you.

Slow

Internet time has been decreased significantly. Our computer somehow received a virus a few days ago. Nasty pop ups were occuring. Thanks to Dave for fixing this issue.

I am taking most of my time trying to work / concentrate on our home. I am slow in doing things and find that I forget many items. Just today, I went downstairs realizing that I had just been cooking food on the stovetop and left it there without supervison. Duh! Can we say multi tasking is an issue? No wonder Dave has been trying to pick up the slack in the home. Laundry, dishes and the sorts are slow in coming. On top of his full time job he has me as his second full time job. My mom has been coming on a set day during the week to help with the above items. Thanks Mom! (although she doesn't get on the computer as much as she used to)

Thank you for patience..

Thank you for you patience...

I just completed last night my chemo cycle. I ended up skipping the Saturday evening pills minus the Zofran due to the headache induced naseau. I have just been tired today. Not sure if you will be reading a school update from me. The more I try to compile the story the more it doesn't make sense or flow well for the blog. I also type slow still . Sorry for those of you who want to know...

I really appreciated the comment someone wrote the other day.

"Praying for a day of peace and contentment in God's faithfulness in your lives as you and all your family deal with struggles most of us can't really know. Wishing your boys great school days and love and patience on the homefront for all of you."

I am thankful for all of you who have prayed for me and the family in the past. I am continually being reminded that this world is full of brokeness/sin. People are hurting and need Jesus. I don't know how people can go through trials without HIM.

It has been an adjustment for me to have the boys back in school. Lots of things to complete on the homefront. It seems like little time. Chemo brain/body may have something to do with it.

k-

School Days

Yesterday the first day of school went well. Also lunch with Joe was good. I'm not 100% today. As time allows I will post more. For now, enjoy the picture.

k-

Doctor, Marriage & Joe

The doctors appointment went well today. My labs look good so does my blood pressure. Dr. Needles thought the headache was at first from the Zofran(can be side effect - ok what isn't?). Then later changed his mind. He and I agreed that it was most likely a chemo induced headache turned migraine. I thought later that it could have been a migraine. I was seeing stars prior to bed. Ughhh! We are going to monitor this effect from the chemo later down the road.

Dave was able to take the day off today. We enjoyed a lunch date at a local Thai restaurant. I devoured my lunch. It was good to be together as we have been under a lot of stress. We are feeling it at home. Please pray for our marriage.

I have been delinquent in informing you about my friend Joe from southern Missouri. If you have not been keeping up. He is a now 82 year old man as his birthday was on August 14. Long story short he was had radiation at Siteman on his left ear while I was having brain radiation in December of 2006. We were able to get to know each other while waiting around. Since our discharge from radiation in February of '07, we have kept in contact. Once by eating lunch together in downtown St. Louis. Other times we have phoned each other. (ok not sure if those were complete sentences.- sorry) It is good to have him as a friend. He has been through a lot since February. Another form of cancer was found in the other ear. He had surgery. Just recently he had a non cancerous growth removed from his back. He is having his stitches removed tomorrow. After his doctors appointment he is coming over for lunch. I am thrilled to have him over for chicken salad sandwiches. He said he loves chicken salad. That's easy for me for Dierbergs has the best around. Salad on dollar rolls...you can't go wrong. The plan is for me to phone him once home from picking up Stuart at school. I am having my mom here to take care of Stu while Joe and I converse.

A fun quote from Joe as he called the day of my ear test a few weeks back. "I'm gonna stir the gravel as long as my feet will let me." Huh? He meant he plans on being around as long as he possibly can. He is an encourgement to me. I am glad I have him as a friend.

Looking forward to tomorrow...
First day of school...Joe here for lunch
k-

Saturdays ache

Oh, where to start? Yesterday proved to be one hard day. I had a mild headache throughout the day then it worsened in the evening. Enough to call the doctors exchange. I was wondering the maximum amount of tylenol a patient could take that would be safe. During the day 500 mg. of tylenol would hardly cut the pain. I knew liver damage could happen if a person took too much tylenol. The on call doctor said up to four grams of tylenol is okay, but we need to monitor this side effect. Tell me about it! The doctor also mentioned some other potent pain med (can't seem to remember at this time) I said no due to the naseau. If the pain didn't subside the hospital would have been a good choice. I went to bed at 8:30 pm with two tylenol and one Zofran for the (most likely) headache induced naseau. I awoke at midnight with no pain. Happiness exuded in the bedroom. I thanked God for the absense of the pain. Friday nights chemo really did a doozie on my body last night. Not something I want to repeat anytime soon.

Tomorrow is my doctors appointment at 11:30. We will find out the lab results from Thursday. You can be sure I will tell him about Saturdays episode. Tomorrow Stuart is also going to meet his teacher and drop off the school supplies in the morning. Tuesday is coming all too soon.

Today was a good day. k-

A Mississippi Visit

Last night the boys and I just returned from visiting my brother, Calvin in Mississippi. My mom went along. It was a short but much needed visit. Dave was unable to go due to him being in San Francisco on business till this morning. We all had a great time in the south. I love the southern "talk".

It has been a low key day. Great to be together as a family for dinner.

Life is not complete till you've been to Piggly Wiggly.

Cousin fun in Mississippi

Today I had my blood drawn for my doctors visit on Monday. I start chemo Friday night through Tuesday. The boys start school on Tuesday even little Stu. His mommy will miss him.

added on 8/22 ** Stuart is going T / Th - half days

Fitting things in ...

This week has been one of trying to fit things in prior to school starting on Tuesday, August 26. Yes it is one and a half weeks away. But gotta get the last minute fun in while we can.

On Thursday we enjoyed the final Family Summer Series Program for 2008. It was a free movie event held most Wednesday and Thursdays during the summer at participating Wehrenberg theatres. The popcorn and drinks were even discounted for the kids. We went to see Horton Hears a Who yesterday. Charlottes Web was another movie we attended that was less than a month ago. Gotta love free! Afterwards great conversation was had at Chick Fil A with friends. Lots of laughter.

We also are trying to swim at the pool after the four o'clock hour. When it is warm enough. I say the weather patterns have been odd this year. Rain galore then a cool August.

Haircuts.

A trip to visit an uncle.

It has been a good summer.

k-

Can you hear me now?

That's right I had my audiology testing performed this afternoon at the hospital. The gal giving the test said in conclusion "Your hearing is what we consider well within normal range." Great! Now it must be my slow processing that is causing my delays. Let's pray that in time it will correct itself. The funny part of it all it that my appointment was really scheduled for Wednesday the 13th. When signing up at the reception desk. I joked with the gal saying "I guess I didn't hear her correctly with scheduling on the phone.

This past weekend was alot of fun for Dave and I. We enjoyed a beautiful wedding on Saturday with a delightful reception. The bride was Lindsay, my previous OT from the rehab hospital. At the reception the tables were assigned seating. We sat with Kate, another patient of Lindsays whom was confined to a wheelchair. Great conversation was had. A coworker of Lindsay was also in attendance. She said she remembered me and how I was not able to use my left side hands, arm legs, etc. She mentioned that I have come a long way. I told her thank you. It was humbling to be in their presence. Memories of December came about.

All in all it has been a good few days at the Snodgrass home.

I also want to add a link that Dave's uncle sent to me today. I thought the scenery and music was good. God has been my friend through all of this. Once seeing it you will understand that sentence. I think the title was Irish blessing.
http://www.e-water.net/viewflash.php?flash=irishblessing_en
k-

Audiology Test

On Monday, August 11 I will have my audiology test performed at St. John's Hospital in the afternoon. It seems that my hearing is not good since my second surgery (December 12, 2007). Not sure what is going on. Most likely it is my inability to comprehend or slow processing/thinking skills could also be the culprit. Whatever the case I asked my oncologist, Dr. Needles if I could have a test performed. He obliged with a written order. He did mention that most people who have had radiation usually have problems with an overload of ear wax. He checked mine at my last visit and said it looked good. "Don't want to be embarassed over ear wax issues." I agreed. Also he mentioned a brain test (can't remember his terminology). I immediately said no for I had a prelimenary one performed prior to surgery. No way am I going to repeat that test! Way too taxing on me. A full three hours of "showing me how dumb I am." I also had a shorter version (one hour) given post surgery in the rehabilitation hospital. No thank you. All I have to say is I have never been good in math. Ask Dave he will concur.

Truth

I am the way and the

truth and the life.

No one comes to

the Father except

through me.

John 14:6

Yes, the blog colors have changed. I like to have some variety in the blog world. It reminds me of my childhood where I changed my room around on a daily basis. Not joking.

k-

The Camper

An energized Carter, Logan & Jimmy

Carter had a good camp experience. A little tired yesterday(as expected). I took him and his brothers out to lunch at McAlisters Deli he had his head down on the table prior to eating. When Dave was home for dinner lots of good conversation was had. The stories were great. His cabin had guys in there from school. Lots of laughs. Something about Wesley being a green machine and needing a quarter. Guy talk- that is for sure! Just keep in mind boy cabins smell. Ok for those of you who have boys know their rooms just have a smell to them. I don't even have a teenager yet so that will be delightful having three boys who just came home from a sporting event. Room Freshener anyone? Not including their friends. OoooEeeeee

A tired Ian, Logan & Carter after camp

It is a Salt & Light camp tradition that they tie dye shirts. Carter wanted to wear his slung over his shoulder. He was tired.

He did have to sing for his care package that was sent to him. He chose "ABC" song and sang it faster than I have ever heard it sung before. Quite HI larious.

We all went to bed early last night. Friday is eventful.

Sour Tude

Hello all. I am here to update you on the past few days. Chemo cycle ended on Tuesday night. Yesterday I was a total grump early in the morning. One sour 'tude. Poor Dave got the best of me early on. (Why is it that you can be a beast to the ones you love dearly and yet fine to others?) My day was fine till the afternoon hit and that is when the fatigue set in. This fatigue is an all over one. Very unusual. Stuart was the only one home with me as Cole was at a friends home and Carter at camp. Stuart loves to watch the movie "Facing the Giants" so that is what we did while I laid on the couch. I really thought if I got up vomit would have been all over the room. Zofran was then taken in hopes that it would help. I was hesitant in taking it due to the increase of constipation. That is one of the side effects. Yeah - NOT! Ok I chose to not vomit over constipation problems. As for the constipation-not like I like to tell the whole world .... My left lower pelvic area is painful. It usually occurs on the latter days of chemo like day 4, 5, and even 6. This morning in bed it was so bad that I needed to lay on my right side.

Today at noon I will be picking up Carter from an area church. He left for camp on Sunday with 100 other fourth- sixth graders. I am sure he will have some great stories to tell tonight at dinner. I heard if they received three or more mail in one day (snail or email) they would have to sing for their items. Not sure about care packages. I sent one last Thursday in hopes it would get to him by Monday. The camp was in Illinois. Snail mail was also sent last week. We will see what he says today. I plan on taking my camera today to have a before camp / after camp pic to show ya'll.

Oops. I forgot to tell you. I have a hearing test scheduled in August. I think I have a hearing problem since the last surgery. Of course it most likely is my slow processing/ thinking. I wanted to know so Dr. Needles scheduled a test for me to find out. I will try to let you know more later on.

Could it be Harry & David?

Just a few weeks ago my chemo provider was switched. Boy was that one confusing day for me. We were not informed that our insurance company decided to switch. My oncologist even used another docs script pad to write on (Later finding out my doc was out of town so another was filling in). Never heard of Dr. Finnie before. so... in short it was an ordeal prior to leaving for our Indiana trip. Phone calls, messages, etc. ya da ya da ya da... Our copay even changed. The above picture show how our first chemo provider overnighted the goods. On our front porch one might think they are getting a wonderful perishable surprise from Harry & David. But no that's not the case... not a delicious pear or chocolate will be had. SIGH. It's just poison for the brain. Kill those cancer cells Temodar! Oh joy. The new provider packages their bottles in a normal fed ex box and won't leave it on our porch. Understand. It is delivered to Dave's work for signage. Bottles pictured are in a biohazard bag. Lovely.
I am thankful for a few specific things in this blog:

1. God who so abundantly provides for our every need. (did you hear? EVERY one!)

2. Work insurance to help defray the cost of cancer bills: MRI scans, bloodwork, chemo, dr. copays, etc.

3. Friends and family being the hands and feet of Jesus. Thank you!

4. Dave has a job. Not just any job but one he enjoys. They are a great employer.

5. Temodar provider has been handled for now.

Below are verses that spoke to me in church. I put in italics the portions of importance. Not that it ALL isn't important- ya know?

2 Timothy 1.7-13:For this reason I remind you to fan into flame the gift of God, which is in you through the laying on of my hands, for God gave us a spirit not of fear but of power and love and self-control.
Therefore do not be ashamed of the testimony about our Lord, nor of me his prisoner, but share in suffering for the gospel by the power of God, who saved us and called us to a holy calling, not because of our works but because of his own purpose and grace, which he gave us in Christ Jesus before the ages began, and which now has been manifested through the appearing of our Savior Christ Jesus, who abolished death and brought life and immortality to light through the gospel, for which I was appointed a preacher and apostle and teacher, which is why I suffer as I do. But I am not ashamed, for I know whom I have believed, and I am convinced that he is able to guard until that Day what has been entrusted to me. Follow the pattern of the sound words that you have heard from me, in the faith and love that are in Christ Jesus. By the Holy Spirit who dwells within us, guard the good deposit entrusted to you.

k-

Couldn't ask for a ...

The doctors appointment today went well. He read over the MRI report and stated. "We couldn't ask for a better report." Whew! Hallelujah in the house? Do I hear it? My bloodwork also looked fine.

I am to start my chemo tomorrow night for the five day dosage of 350mg. Please pray for my constipation. I try my best to bulk up on fiber and lots of water. My lower left abdominal side hurts if I have constipation problems. It is not fun especially early morning. I also get headaches that tylenol only cuts a portion of the pain. Hey a portion is good. I am counting my blessings today on such a dreary rainy St. Louis day.

Thanks for praying. I hope to post sometime soon in regards to the chemo fiasco we had prior to Indiana as I have it already down on paper. Sorry for the run on. I do that well.

See you soon. k-

Weary & Fearful

I did have my MRI this morning and it went well till I decided to dwell on my fearful thoughts. It wasn't intentional. In the past weeks thinking about the "what ifs" I tear up. I really am fearful of my cancer coming in on the left side of my brain. I am wanting to be open with you in blogland. So here it is.... Yes, I have fear I am human. But, I hate the thoughts of possibly having another surgery if the cancer returns. The last surgery was too much as I have been thinking about where God has taken me since December. Please pray for my need of encouragement. Fear is not something I usually dwell upon. THANKFULLY

I like to think I will get used to the idea of scans/ bloodwork every few months yet it is becoming more of a chore. I am tired. I have mostly good days to which I am thankful.

A fun song comes to mind tonight (a wild youth song):

Fear not for I am with you
Fear not- fear not
for I am with you. Says the Lord.
la la la la la la la
Fear not for I am with you
Fear not - Fear not

Thursday see Dr. Needles for MRI update

k- I'm thankful for a wonderful weekend we just experienced in Indiana.

Walker Family Reunion 2008

We just spent a long weekend in Indiana at the Walker reunion. We came home late last night. Dave's dads mom was a Walker and was one of nine kids. The reunion is held every three years. We had a great timeunofrtunately the time seemed to fly by so quickly. This year a total of 106 people attended. Lots of pictures were taken. We also enjoyed our time at Grammy & Pop Pop Snodgrass home. They have two horses with lots of land. Stuart and Cole delighted in giving the horses treats and their food. Stuartcalled the horse treats "tummy yummies" Trivia here 1. Why and where does he get this from? Stuart was also given the opportunity to "ride" Joey. No camera was around at that time unfortunately. On Sunday afternoon we spent some time with Mema Snodgrass bowling. It was Stuarts first time. Among multiple gutter balls he actually knocked a few down by himself. With our help he knocked down even more.

Cole and Stuart playing in Grammy & Pop Pops loft area with their "pully". It was made of a plastic like rope with a plastic mug tied to it. We would give them surprises when they lowered it to the main level of the house. A cookie or lego piece would be one of the surprises.

Carter enjoyed doing his normal bb gun shooting.
Cousin fun at dinner. The Mary Snodgrass clan at the Walker reunion. Stuart's bowling attempt.

MRI prayer request

Now that my MRI is a few days away...I would appreciate your prayers. It is our desire for it to be a "no change" from previous scans. If that is the case, we will proceed with scans every 3 months instead of every other month/two months.

MRI - Tuesday, July 22 at 9:45 am.
Dr. Needles consult - Thursday, July 24 at 11:15

Talk to you soon. Have a great day!
k-

Here With Me

This song is a blessing to me today.
Here with Me by Mercy Me.

http://youtube.com/watch?v=74CNUExD4I8

May it bless your heart.
k-

A week in review

It has been a good week.

On Monday we went to each library for our reading programs. We do two. The Kirkwood library is the best around. St. Louis county libraries are good. Hey if you read - might as well get the credit for it. The boys enjoy the treats they receive. Carter had a big game that night as well to which they lost. The opposing team is so polished that they literally practice at least 3 nights per week. They have an "A" & "B" team they rotate. Tournaments galore. Too serious for us. I am grateful for the team Carter plays on. The coach plays to win but, it is graced with grace. The body language of the other head coach was Horrible(with a capital H). When a player struck out, he would be so disgraceful to the player. Whatever... They are ten years old. Get a life! Sorry for my tangent. Priorities!

Tuesday proved to be a great one of fellowship for me. The boys and I went to a friends home to play and eat lunch. Stuart had a delightful time in the backyard looking for/avoiding bugs while his buddy Ryan was doing the same. A fly was a spider. Hmmmm. Three year olds are so fun!
Stuart fell asleep on the way home. So much for my quiet time. (That's another story for later.)

On Wednesday I awoke to not liking my hair and called to see when a next available appointment would be in a weeks time. Tonight at 7. Yeah! It is remaining short till the surgery hair/bangs to grow back in. I am at a good 3+, 4 inches. There is freedom in telling your hairdresser to do whatever she wants. Within reason. Dave complemented the hair when I returned.

I seriously did not shower on Thursday for my hair to look decent. I received an email that I was reading at 7:45 am so... Spur of the moment literally at 8am I decided we would go to see a free movie. We had to be at the movie theatre by 9 for the10 showing. Free tickets "sell out". The boys had fun watching Charlottes Web. Yes, it was fun although locking the keys in the van was a sight to behold. Yes, the Chesterfield police came to the rescue. I was too excited in seeing our friends that I totally left keys in the middle console. Cole needed to put his lovie- Super Junior back in the van prior to the movie starting. So it was good to not linger in a hot parking lot after the movie. Yes, my car alarm went off after the cop was able to manually unlock the van. Look everyone at the lady with the cop! A good laugh was had. Cole had a ball game later in the evening. They hadn't played in about a month. His team was a little rusty. All in all they had fun. When asking Cole "What was the score?" He replied "I don't know." He has had a good season. A totally different response than what Carter would give. I love that they are so different. They both are having fun. Carter more if he wins. He is just like his mother. Cole on the other hand has fun even if they lose. Good job, Cole.

On Friday the boys were a hoot to watch while cleaning the play room/ basement to party music (Thank you Aunt Sherri) Stuart joined in. I have to say it was good to listen to when I had a vacuming break on the second floor. Loud and fun. By the noon hour we ended up at the pooland stayed till two. I forgot to put sunscreen on my face. So welcome to racoon face for the weekend. A BIG announcement here! Stuart has been swimming off and on without his life jacket. Today he officially jumped off the diving board and swam to the ladder. This pool is a small one so a life guard allows me to be in the deep end to be there for him. He did great! We also tested to see how he did with the slide. He mastered that as well. My little swim bug. I knew last year that this would most likely be the year he swims. Whopppeeee! I will still need to be close by to monitor his progress. Crowded pools will not be my thing. Too much of a risk. When jumping anywhere into the pool, he has been instructed to curl your toes and jump straight out! This has been engrained into his little mind. At the slide he asks "Are you ready, Mommy?" He cannot come down if he doesn't hear a response. He obeys well. Thankful for that! I am serious about the pool and kids behavior. The older boys know I do not tolerate monkey business. They are disciplined accordingly. Stuart knows as well.

Saturday was so much fun. I decided I needed some more shorts to help end the summer. Carter and I went to Goodwill among other stores on a search. We found at least 5 shorts for Stuart less than $2.99 each. Some were $2. None for me. Carter was thrilled to find madris plaid shorts for him. Two dollars as well, can you believe it? I will need to find someone to take in the waist. He doesn't mind that his underwear line shows but Mom and Dad do. He is just too cool for words. The afternoon was spent at the ball field. Coles team had a forfeited game to which we as families played against the Eagles. Everyone had a blast! You should have seen the moms and dads along with siblings play. Aunt Jeanie even joined in the ball game fun. She stopped by our home so she was invited to play. She is a great third baseman/ woman. That pitching machine is so fast. My word. Another mom and my friend, Melissa and I were chanting a cheer. Carter had a home run while I was in the outfield- WAY over my head. I think it was totally intentional. He ended up playing with the Eagles which was good. Dave had one as well on a half swing with Carter's new birthday bat. I think he hit the bats sweet spot. He even batted left which is not normal. I personally was thrilled to be able to run and catch a ball. I was thankful to be reminded of late December 2007 where I have come from since surgery. God is good. After the family game an end of season BBQ was held at a players home.

This morning was a great time of worship. After a good lunch a long nap was overdue. I was reminded that it is only by God's grace that I am here. No headache last night after a long day. Praise God! That is big!

Along those lines... Stuart is cutting out his nap which is making it hard for me to rest during the day. Please pray for me to be able to have some down time. I used to do mandatory quiet time with the older boys in years past yet find it hard to do for my energy level is lacking. Once the two o clock hour comes around here comes the draining of energy. Not to leave out the chemo days... I have bits of energy at spur of the moment times and yet draining moments as well. I look forward to my mom helping out at the end of this month as she has been away. Chemo starts on Friday, July 25 for five days. My MRI is on Tuesday the 22nd.

Thanks for praying. God clearly has blessed our week with so many good things - Thank you for being one of those blessings!
k-

Treatment plans till 2009

I have been asked "What are the treatment plans (Tx) from here on out?" (The "Tx" was for you LJ) I am going to lay them out for you. Keep in mind these are the doctors plans so I am holding on to them loosely knowing full well they change in a instant if it is not the Lords plans. I am learning not to hold on tightly to plans with white knuckles. So here we go. Be sure to ask questions in the comments. I will be glad to answer any.

In his heart a man plans his course, but the LORD determines his steps.

Psalm 16:9

See oncologist, Dr. Needles monthly with bloodwork results. MRI's are prn (as the doctor deems necessary), lately they have been every other month- basically every two months. My next scan is Tuesday, July 22 at 9:15. If that is a good report Dr. Needles stated that he would most likely spread the scans out. Hopefully meaning every three months. The Temodar (chemo) will be taken at least up till February 2009- 5 days on, 23 off, dosage could change depending on the bloodwork. So in short visits, more visits, even more visits. cancer, cancer, cancerland. I look forward to the day I do not have doctors visits every month. Dave said to me that is how we would want it. To keep track with the cancer. Yes, it gives us a peace of mind. He is correct.

Chat with you later...

kate