It is crunch time for a decision to be made in regards to treatment. It is known that if a cancer patient is to do conventional treatment after surgery they are to do it within 6 weeks post op. That would put me at this coming Tuesday the 19th.
I am struggling with the fact that if we are to follow Dr. Yung's treatment should we seek another oncologist & radiologist in the area that would follow out his advice of radiation alone then oral chemo (Temador). There are other treatment centers that offer the IMRT. I am weary of seeing MORE doctors. I also am unsure if seeing more doctors is what I should do. I would love to do a less invasive treatment plan of radiation (XRT) alone than with chemo. Although my cancer might need the "big guns"- XRT & chemo. The side effects of chemo are 1. fatigue 2. constipation 3. low blood count (specifically my bone marrow will be effected which in turn results in increased infection and possibly luekemia). The possible side effects of XRT are bad enough. Of course, I think cancer is B-A-D.
On a side note the dosage for chemo with Dr. Yung's plan is 380mg (which is quite large) after the XRT. The dosage for Dr. Linette is lower (140mg) during the XRT and (280mg) after. I am not sure what is better.
I am struggling with the fact that if the Barnes Tumor Board discussed my case last Monday eve, then a group of physicians cannot be a bad thing. I hold to the fact that "In a multitude of counselors is wisdom". I guess you could say that for 3rd & 4th opinions as well. I would hate to drop the Barnes physicians like a sack of potatoes. They are known to be great physicians in the midwest. I also wonder if Simpson & Linette are worried about liability. In short there is NO STANDARD treatment plan for my type of cancer.
I have a simulation scheduled for today at 1:30 with the office of Dr. Simpson at Barnes. I would love to have a decision made prior to noon today. I may make some MORE phone calls to see if any oncologist would be able to see me PRONTO (today or Friday). Pray also that a contact can be made to Dr. Yung in Houston today. He is only in the MD Anderson clinic on Tuesdays so that will be difficult to get a response. Not too difficult for God. He will go before me as He has been doing. I would love to discuss with Dr. Yung his deep reasoning for doing the XRT alone. He might be a doctor that needs concrete evidence to do the XRT/chemo treatment.
Yes, I am up at the wee hours of the morning typing this update. I fell asleep on the couch last night and woke up at 12:45 am.
Continue to pray for phone calls, clarity, peace, direction, WISDOM! Too many decisions- This is almost worse than the surgery itself. While you are approaching the throne, please pray for the Morris family, friends of mine who are in a difficult time. One of their twins, Meagan died at 8 days old. The funeral was yesterday. My heart aches for them in their loss.