So sorry for the delay today on the blogger. The update took MUCH longer than expected.
Day 2 radiation is complete. My IMRT machine was being worked on due to the table not functioning correctly. They put me in a different IMRT room. The only bummer was that my CD was in the other room and couldn't be brought to my room. My music the first day brought some comfort to the unknown. Today, U2 was my choice of CD's that they had on hand. I now know to always carry my CD's with me at all times and not leave them in the room as they had suggested. I met with Dr. Simpson today instead of Wednesday. We had good conversation. I am looking forward to getting to know him in the weeks to come. I will be seeing him 1x a week. He has 3 boys.
Last night after posting & the boys were in bed I was having a difficult time emotionally and physically. I had some shivering (I wasn't cold) and a headache. Tylenol took care of the headache. It seems that it is in the evening that I have some low, emotional moments. The unknown long term side effects are a big concern. I also do not like the thought of taking poison (Temador) for a full 6 weeks with no breaks, unlike the radiation. I have concluded that I need to take one day at a time with treatment. I have only 28 treatments left for radiation. Usually M - F except for the New Year's holiday. I am counting down till February 7.
OK - drum roll here . . . . . . . No nausea today. Now the cymbals!
I did not take a nap this afternoon so hopefully I will sleep well tonight. Carter, Cole & I went ice skating for 1 hour. It was fun for all. Cole even had more confidence than he has had in the past. So proud! All of us were glad to get our "ground shoes" back on. I definitely was not meant to be a figure skater. - my figure & skates are painful
Looking for moments to brighten someones day at Siteman have been a good diversion for me. A smile and a kind conversation is all a person might need for that day. I am glad to have various opportunities in the past 3 days. I have met at least 4 people. I am also trying to remember my low, dark moments so I can minister to someone else in the years to come who will be going through this. I can say this IS the hardest thing I have EVER had to endure. It is a true roller coaster of emotions hour by hour. Never have I been so fearful in my life (mainly due to the side effects).
Tonight my concerns are:
1. lower right side doesn't feel quite right - not painful just uncomfortable
2. only one BM this morning, 2 hours later than normal
(yeah! you get to hear about my BM updates)
Thankful that I only have two concerns for the evening.
Not worrying about tomorrow for tomorrow has enough worries of its own.