This afternoon I am having a rough time emotionally. I am really fearful of the side effects of the oral chemo, Temador. I have discussed in depth my concerns to a recent Barnes brain tumor patient who was on the same protocol as mine. She stated that her main side effect (during the 5 day dose after XRT) was severe constipation and VERY tired. I am most worried about long term effects on my body internally. I am not second guessing our decision. I have never been one to take many drugs. I also know I would regret it if I did not do some type of conventional method.
Dave was in contact with Dr. Yung on Thursday. Dr. Yung stated that it is OK to do a more aggressive approach. That was good to hear. Praise God that we actually were able to have some contact with him. I also know that 380 mg of Temador per Dr. Yung's advice would probably have worse side effects. With Dr. Linette it is 140 mg with radiation & 280 mg after the radiation. I think in the long run they balance each other out.
Dave & I do not think that Houston was a wasted trip. It was good to have some more insight on this tumor & to also know that we sought out all our options. It was also good to spend some alone time together.
Pray feverently about the side effects of chemo & my emotions. I hate having to make any decisions regarding cancer. It really sucks! I am willing though, to feel like trash if it means that my life will be extended for my boys.
Kate
2 comments:
Kate
I want you to know that you are on my mind and in my thoughts and prayers continually. I check your blog at least 1 or 2 times a day. I am friends with your mom and her and I are in a bible study together and have been off on for several years she is also a friend and coworker of my mother in law. I am the same age as you and have 2 childen Natalie who is 6 and Liam is 4 and I am finishing up treatments for cancer myself although I had a different type . I can honestly relate to how you are feeling. I want you to know that how you can express yourself is beatiful and so helpful for others especially myself as the word cancer can be so consuming in every way I would like to share something that I read that help me when other people would say things about the big C (cancer ) the devotional that I was reading explains it better than I could ever it said Let Christ be the Big C and cancer be the little C. You are strong because Jesus lives in you remember this and if you would like to talk I am always available however I understand how precious time is and how right now time is filled but remember I am praying and love hearing your heart and seeing how precious your life is.
Jennifer Schneider
Washington,MO
Dear Kate,
This will be quick--Carly has a BIG STINKY diaper, and Cooper and his buddy Alex are REALLY complaining. Carly, of course, is giggling as she chases them around the house!
Anyway, I'm so glad Dr Yung was accessible yesterday. A definite answer to our prayers!
I'm praying for you and your concerns/fears. I'll try to write again later--after bedtimes!
Love, Tiffani Gibbs
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